Heat and MS
Today was a hot (87°) here in NC. Its that time of year where not only myself, but many MS patients experience temporary worsening of symptoms, especially if the humidity is high. Mine typically include increased blurred vision, more hand tremors, and worsening headaches. Overall I just feel blahh! Not to mention the fatigue sets in, and a beautiful sunny day turns into a nightmare.
So, today to make an effort to spend time outside watching my kiddos play on their splash pad and to get a bit of much needed sunshine, I prepared. First off I placed bottles of water in the fridge and freezer; this way they are ready to grab to cool me off in a pinch. Hydration is important. Secondly I wore cool clothes. We're in quarentine due to Covid-19 so it wasn't a fashion statement. I pulled my hair back, wore a tank top, and cool breathable shorts. I kept a cool cloth on my shoulders to help keep my body temperature down . Lastly, to keep things fun for the kids we made Sherbert Punch. It was ice cold and refreshing. We even added pineapples to it!
I will admit that even with perparations, the headaches still came, and I felt the need to step indoors for a bit, periodically. However, none of my other symptoms were worse. While heat can be bothersome with MS we have to remember its typically short lived and usually resolved once our bodies return to cooler environments. So never be afraid to attend a back yard bbq, or to sit out and watch your kids play in the summer months. Just come prepared and take breaks indoors when you need to, don't over do it! Remember you have MS, but MS does not have you! Be blessed and be safe y'all.
I've got a case of insomnia
Ok. So it's 12:05am and I've got to be up by 7am to get my day started for work and what do you know...I can't sleep!
If you have MS I'm sure you know about all the struggles of sleep issues. It's either you are dead tired or wide awake. For me I'm typically sleepy All The.Time! I can get 14hrs and still be tired. Trust me, I've done it. Sleep/fatigue issues are one of the most debilitating issues associated with MS. If it's disrupting your life talk to your doctor. My case is so bad I've recently started Provigal up to 200mg/day (disclaimer: never ever take a drug without speaking to a doctors and getting their approval) to stay awake so I can function. It's only been 1 wk so so far but no fatigue during the day so that's a plus..but now I can't sleep at night!
A part of me wants to get up and clean my entire house while the kids are sleeping, but at the same time..I don't wanna, wheres my cry emoji when I need it. I just want to sleep. So I'm going to invoke my go to method to help fall asleep: the 4-7-8 trick. Close your eyes and breathe in your nose for 4 seconds. Now hold it for 7 seconds, then completely but slowly breathe out for 8 seconds. Typically, I'm knocked out within 2mins. Here's to having one more go at it. Good night my warriors.
MS In the Mix Plus Six
Hello there, I'm Sharika. I'm a mother, a wife, a sister, an aunt, and a host of other other titles, and on top of that I've got Multiple Sclerosis- Relapsing Remitting (RRMS). Around here life can get crazy, but with my triple P process; patience, perseverance, and positive thinking I've found that through it all, I can accomplish anything.